Cystic Fibrosis in the 20th Century
Publisher: Carl Doershuk
“Cystic Fibrosis in the 20th Century” chronicles the remarkable increase in survival and quality of life seen since the description of the disease in 1938. It includes the origins and subsequent impact of the US CF Foundation, the International CF [M] Association, and the International Association of CF Adults on the natural history of the disease. Described are the many individuals who served on and furthered the growth and effectiveness of these organizations. In-person memories dating from the 1940s, are recounted by a spectrum of key participants in the Cystic Fibrosis story, including past presidents, early organizers of the several CF organizations, care providers and researchers, community volunteers, family members, and also patients themselves
The parallel evolution of the associations of the families affected by the disease and that of the clinicians, the diagnostic methods, funding, various treatments, and research developments are vividly described.
- Contents: Hard cover, 29 Chapters and Contributors
- 370 pages, 23 pictures
- Indexed by Subject and Name